PRIVACY POLICY
Pakistan National Epilepsy Registry
Pakistan National Epilepsy Registry is a national registry for patients with epilepsy. This study will enroll patients with a confirmed diagnosis of epilepsy from multiple centers across the country. The purpose of this registry is to identify risk factors, epilepsy types and subtypes, clinical presentation, management, and outcomes of these patients.
Patients will be enrolled from more than 50 centers throughout the country, including AJ&K. The target enrollment is 4,000 patients per year over three years (2025–2028).
This study is endorsed by the Pakistan Epilepsy Society.
This study is supported by: Health RAB, Pakistan.
Ethical clearance of this study is approved by:
CONSENT:
Physicians enrolling patients from clinic will take informed consent from participants.
CONFIDENTIALITY:
Only PI will have access to all data. Data will be kept confidential and will only be used for research.
COLLABORATION:
All collaborating centers will sign a collaboration agreement with PI
TRAINING AND CERTIFICATION OF PARTICIPATING CENTERS:
All participating centers/ investigators will be trained for operational definitions, data collection and research ethics including GCP (good clinical practice)